From the photo on the left to the photo on the right only took 3 1/2 months!
I was recently diagnosed with congenital hip dysplasia and miserable malalignment. This blog will be a chronicle of my journey through diagnosis, surgery, and physical therapy.
Monday, November 14, 2011
Zumba!
From the photo on the left to the photo on the right only took 3 1/2 months!
Tuesday, September 13, 2011
3 months and beyond
The same day as my hip appointment I also went to the gyno. Of course they found something wrong because nothing ever goes right with my body. So yesterday I went and had an ultrasound done under my right arm because I found a lump over the summer. Thankfully the radiologist thinks it is just a swollen lymph node and I just have to go back in 2 months to get it checked. I'm about done with this doctor stuff btw....
Thursday, August 25, 2011
11 weeks and trying to walk
Thursday, August 11, 2011
9 weeks & PT
Thursday, August 4, 2011
8 weeks post op!
Thursday, July 28, 2011
Follow up with doctor
Tuesday, July 26, 2011
7 weeks and back to work!
Oh and I just want to vent about the stupid wheelchair company and stupid Lighthouse Academies. I have been calling Cobra insurance since July 12th because the dates are wrong on when my insurance ended with Lighthouse Academies. Cobra contacted Lighthouse to try to fix the dates and they are still waiting to hear back. I have been calling Apria Healthcare that I rented a wheelchair from to try to get them to pick it up since July 14th and they FINALLY called me back today to schedule the pick up. But I was in a meeting at work so the phone tag begins.
I will try to update again this Thursday after I go to the doctor.
Tuesday, July 19, 2011
6 weeks
New adventures coming this week: the next two afternoons I am going to go help out at work in the office since I'm not able to go out to neighborhoods to recruit students, Friday night is an Indian's game downtown, car show at the fair Sunday, and Monday is my first official day of work!
Tuesday, July 12, 2011
5 weeks post-op!
I am having some new issues. I'm having a lot of pain under my scar when I stretch my leg out. My scar also feels really dry which might be from all the sun I got on Sunday. I keep putting lotion on it. When I try to imitate walking, I end up with a lot of pain in my knee.
My next major challenge will be in less than two weeks when I start my new teaching job. The first week is at school with no kids. I don't go in till 9:30, so that will be nice. Then the 2nd week we will be traveling to Nashville, Tennessee for a conference. Five hours in a minivan does not sound exciting or comfortable at all. Then I will have one more week at school without kids and the kids start August 16th. The month of August will hopefully be easy on me since we will dismiss at 2:30 instead of the normal time of 5. I'm really glad I made this job change because I get to start later, have more time without kids, and ease into long days. Especially since I'll be doing PT in August too.
Tuesday, July 5, 2011
Week 4
Friday, July 1, 2011
Skinny little leg
Wednesday, June 29, 2011
Ants
Tuesday, June 28, 2011
Three weeks!
Wednesday, June 22, 2011
Two week follow up with doctor
At first I was confused when I got taken back for the doctor-they didn't take me straight to x-ray. But Dr. Scheid said they were going to limit my radiation exposure and do my next x-ray when I go back in four weeks. He asked how things were going and looked over my incision and stitches where they scoped. He was concerned about the weeping along the bottom of my incision. I can uncover that part in the shower but then I have to put a clean dressing over it tightly. He also prescribed me some antibiotics in case of infection there. Still no weight on the leg until I go back. I am supposed to mimic walking with crutches by putting the foot of my bad leg flat on the ground. Only the weight of the leg can go on it. He doesn't want me driving until I clear out some pain meds but I can use the recumbant bike. I just need to get to where I can drive myself to the gym. Lastly Denise popped out all of my stiches. Yay! I follow up with him July 28th. I had to do five weeks because of the transition from one job's insurance to the next. I don't want to have to deal with sending bills to Cobra.
Next big milestone: I'm getting all fancied up for a wedding on Saturday. Definitely using the wheelchair for this one!
Monday, June 20, 2011
Two Weeks
Then I went out again Saturday morning to grocery shop and after the trip around Meijer my hip was so stiff and sore that I had to stay in the car at Kroger. Then I actually went to dinner Saturday night but only lasted about two hours until I started to have pain. Today was my first day home without any support and it went well. I am able to shower on my own and take care of my own food. But I still am having to take pain meds every 3 hours and every time I try to go longer, I start having pain right at 3 hours. I go back to the doctor on Wednesday so hopefully the X-rays look good. Here is a picture of my scar at 2 weeks.
And here are my doggies that like to get in my way.
Tuesday, June 14, 2011
One week!
Last, but not least, please keep my friend Ashley in your thoughts and prayers. She is about to have her 8th orthopedic surgery on June 20th in Boston and is super stressed about it. She needs all the good vibes she can get!
Here is a pic of my silly Lilly doing what she does best. I hope it brightens your day!
EDIT: I forgot to add that I have my follow up appointment with Dr. Scheid on Wednesday, June 22nd at 9:15 am. I can't wait to see my x-rays!
Sunday, June 12, 2011
Day 5- Clean!
- I can walk to and from the restroom on crutches by myself
- I was able to sit in my wheelchair for about 30-40 minutes before my hip was irritated
- I got dressed this morning using my grabber
- I took a shower with just a little help from my husband
- I pooped! (I thought it was funny that the Dr at the hospital asked me everyday if I had or not)
Friday, June 10, 2011
Day #3- EXHAUSTED
Thursday, June 9, 2011
Post op Day #2
Post op day #1
Surgery Date
Jeff and I get to the hospital at about 6am and go to admissions. I sign some paperwork and then get taken up to the surgery waiting area. I got checked in and they got Jeff set up with a restaurant pager for updates. Then they took me back to pre-op alone. I told the person taking me back that I really didn't want to go alone because the IV was the scariest part, so they cleared it for Jeff to come back with me. I did the normal pregnancy test and then got changed into the hospital gown. My nurse came in and had me sign the consents. We talked about getting something for my nerves and she said she would have to start the IV in order to give me anything. So she did the IV, it was really quick and didn't hurt nearly as bad as every other time. Then the anesthesiologist cleared it for me to have some morphine and something for nausea. So after that I was pretty happy go lucky. Dr. Goodlow, the anesthesiologist came in to ask me health history questions and go over the way my anesthesia would go. After that Scheid came in to discuss how the surgery would go, and Maiers came in last. They both signed my hip. Then I went back to the operating room. I was awake, but didn't have my glasses on so I couldn't see much. I did see all the contraptions on the table to hold me in place. The next thing I remember is waking up in recovery, but barely being awake. It seemed like as soon as I woke up they moved me. I also had A LOT of hip pain at this point. I didn't know why. Once I got settled in my room and they were getting all my stuff hooked up, we saw that there was liquid dripping down my arm by my IV, it wasn't connected all the way. So once they got that set, my pain got a lot better. They also put me on oral pain medication to help me through the night because they wouldn't do a basal. So at this point I was really hungry, I was getting Morphine through my PCA pump and taking Norco 10 by mouth. I think I started itching really bad before bed so they gave me something for the itch, but it wasn't benadryl. Jeff left that first night around 7pm and I was awake a lot over night. I had no problem eating at all. I was a little scared about the nurses I had that night because I had two nurses and one of them was new. They couldn't figure out the PCA pump, how to change it. During the night I was able to get one shot through my IV of benedryl to help the itching.
Tuesday, May 31, 2011
1 more week!
- Am I going to be able to do my class work? Will I get bad grades?
- Am I going to be in a lot of pain?
- Am I going to be able to do the exercises they tell me to do?
- Can I get around the house with two large dogs?
- Am I going to be stuck in the bedroom for several weeks or can I move to the couch?
- Is the surgery going to fail? Am I going to be stuck having a lifetime of surgeries?
- Is my insurance going to be a pain?
Wednesday, May 11, 2011
28 days from now...
How many PAOs have you done? How many do you perform per year? He performs between 20 and 30 PAOs per year. He actually just did two yesterday.
Why do you think previous PAO’s you have performed have failed? Everyone's hip anatomy is different. Sometimes it is difficult to see how a person's femoral head is shaped and how it needs to be corrected prior to surgery.
Do you foresee any issues that could cause my PAO to fail? No, everything looks normal and pretty straight-forward in what needs to be corrected. He is going to pay special attention to my femoral head to make sure that it does not need any reshaping. He is also going to be making adjustments to make sure my rear coverage is corrected as well.
Should I have an updated MRI prior to surgery? Not necessary since I am having Dr. Maiers repair my cartilage.
What is the worst case scenario for surgery? Death, infection, all the normal complications that come with any major surgery. Biggest risk with the joint is that there is an over correction and an impingement occurs.
Can I get my knee screws removed? Yes.
How long will the surgery last? 2-3.5 hours for PAO. Dr. Maiers will take about an hour.
How long should I be in recovery? 2 hours
How long should I be in the hospital? 4 days
What kind of room will I have in the hospital? A private room with space for a cot if anyone wants to sleep over.
How long on crutches? Will I need to use a walker? 10 weeks on crutches and possibly use a walker at first.
How long no weight bearing? Will start to put weight on leg at 5 weeks.
When will I start PT? At 6 weeks.
What will my pain management plan be like? This will be discussed with anesthisiologist the morning of surgery. Most likely epidural, then pain pump, then have to be on oral medication for 24 hours before I can be released from the hospital.
Will I need a catheter? Yes, it will be put in while I am asleep and I will wake up with it in.
Will you be using anything to accelerate bone growth? Was this used during my knee surgery? No and no. It has been shown to cause excess bone growth in some patients and my bone should heal easily without it.
Will I be using a CPM machine? No
Can I get a temporary handicap tag? Yes, I have the application that can be taken to the BMV right after surgery. Can use the tag for 3 months.
How can I get a wheelchair to use at home? Yes, will be arranged before I leave the hospital.
Any equipment that I need to acquire prior to surgery or will it be provided when I leave the hospital? All of this will be arranged while I am in the hospital.
Any nerve damage expected? Will probably have a numb patch like I do on my knee.
Will I have to do lovinox shots or can I take aspirin like after the knee surgery? I will have to do the shots this time. Once a day for about a month after surgery.
When will I be able to shower? 7 days after surgery. Can shower before hand, but can't get incision wet.
It is so hard to believe that this surgery I have been planning to have for about 2 years is finally happening in 28 days. I am ready now to just have it over with so I can move on with my life.
Saturday, April 16, 2011
7 weeks!
I am relieved that I finally have a surgery date, but I am also very scared. This is real now. I keep wondering if I could live without the surgery. But then I try to walk or stand longer than a half an hour and the pain is out of control. I hate losing my entire summer, but when else can I do this? At least I will have a friend also going through the same thing. Her surgery is a week before mine, May 31st, and is in Michigan. So we will both be able to share stories. She has also already had this surgery on her other hip, so she will be able to tell me if everything is going "normal" for me.
I will try to update more regularly now. With my questions that I need answered and all my other appointments coming up. I will also update post-op on how things are doing.
Here is a video from another hip chick's blog that further explains the PAO.